As it's the anniversary of a year since lockdown, Cambridge University want to find out how people with autoimmune rheumatic diseases like Sjögren’s Syndrome, have coped over the year, changes to care, views on telemedicine etc. Please do take part if you can. They are hoping to close this survey by the end of March.
Please read the information sheet at the start of the survey!
Here is the link to the survey: http://bit.ly/CovidCare2021 (please tap or control and click to follow link).
They are also looking at the impact of online peer support groups, but you do not need to be a member of an online group to participate as you can skip those questions.
This study has been requested by rheumatologists and policy makers to help plan changes in care, policies and understand the patient-views, so is a great chance to get your voices heard!
The lead researcher, Melanie Sloan, and several of the research team have lupus or another autoimmune rheumatic disease so will be very sympathetic to any challenges. Please do read the information sheet at the start of the survey and contact Melanie if you have any questions on mas229@medschl.cam.ac.uk
The survey is open to everyone over 18 and from every country if you have one of the disease types listed on the attached information sheet or are on the diagnostic journey.
Thank you!
