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RAIRDA - Survey


We’re part of the Rare Autoimmune Rheumatic Disease Alliance (RAIRDA), a coalition of charities which campaigns for the best care and support possible for people living with these conditions.

We know this is a concerning time for people with rare autoimmune rheumatic diseases. Over the past few weeks, we’ve seen a significant increase in people using our website and helpline to learn more about what actions they should be taking to protect themselves and those around them from coronavirus.

We want to make sure that the views and experiences of people with RAIRDs are represented and recognised at the highest levels. To help us do this, RAIRDA are conducting a short, anonymous, survey of people with these conditions. It covers a range of questions, from how clear government advice has been to how your normal appointments and care have been impacted.

To complete this survey, click here.

Filling in this survey will help us raise issues around the impact of COVID-19 on people with these conditions, but we also hope to explore ways care could be improved in the longer-term.

The survey should only take a few minutes to complete, with most questions being multiple choice.

You can find out more about RAIRDA on our website:

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