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British Sjögren's Syndrome Association - BSSA

The British Sjögren's Syndrome Association (BSSA) was founded in 1986, as a registered charity, to raise awareness of the disease and support research into its cause and treatment. A self-help organisation with more than 1800 members, the BSSA is dedicated to providing mutual support and information to individuals affected by this disabling disease.

Latest News from BSSA


Language Matters Survey around Sjögren's Syndrome

A conversation has recently developed in the international community about the language we use around our disease. A formal Nomenclature initiative has now been developed to address this and is co-led by Drs. Alan Baer in the U.S. and Manuel Ramos Casals in Spain. The BSSA would really appreciate you taking part!

more details here
patient survey

Rheumatology patient survey from the University of Cambridge and patient groups.

This survey asks about your medical relationships, disease symptoms and mental health. It should take around 20-40 minutes to complete (you can pause or stop at any time). We are supporting this study as it will raise awareness about the areas most important to you and where more support may be needed.

more details here

BSSA Annual Conference 2022

We are delighted to be holding an annual conference this year on Saturday October 8th at the Steam Museum in Swindon. Tickets are available from our online shop and are £25 for members and one guest. Tickets for non-members are £50. Tickets for watching the live stream of the event are £15.

more details here

Dr Elizabeth Price - Updating Sjögren's Guidelines Podcast

Oxford University Press Podcast with Dr Elizabeth Price.

more details here
Looking after yourself

BSSA Webinar - Looking After Yourself

The BSSA was delighted to hold its very first live webinar. It was presented by Dr Elizabeth Price, Consultant Rheumatologist at the Great Western Hospital in Swindon. Dr Price is also BSSA Medical President and Trustee.

more details here

Latest Forum Posts

hot feet

Hi, does anyone else suffer from hot feet, like a burning sensation? and what causes... more

What foods help or aggravate your symptoms?

Hi. Has anyone found foods that help or hinder Sjogren's... more

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