The British Sjögren's Syndrome Association (BSSA) was founded in 1986, as a registered charity, to raise awareness of the disease and support research into its cause and treatment. A self-help organisation with more than 1800 members, the BSSA is dedicated to providing mutual support and information to individuals affected by this disabling disease.
A conversation has recently developed in the international community about the language we use around our disease. A formal Nomenclature initiative has now been developed to address this and is co-led by Drs. Alan Baer in the U.S. and Manuel Ramos Casals in Spain. The BSSA would really appreciate you taking part!
more details hereThis survey asks about your medical relationships, disease symptoms and mental health. It should take around 20-40 minutes to complete (you can pause or stop at any time). We are supporting this study as it will raise awareness about the areas most important to you and where more support may be needed.
more details hereWe are delighted to be holding an annual conference this year on Saturday October 8th at the Steam Museum in Swindon. Tickets are available from our online shop and are £25 for members and one guest. Tickets for non-members are £50. Tickets for watching the live stream of the event are £15.
more details hereOxford University Press Podcast with Dr Elizabeth Price.
more details hereThe BSSA was delighted to hold its very first live webinar. It was presented by Dr Elizabeth Price, Consultant Rheumatologist at the Great Western Hospital in Swindon. Dr Price is also BSSA Medical President and Trustee.
more details here