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Tips from other members
- I would like to share the following with other members, like all SS sufferers I have tried a lot of things to help my dry mouth at night. For the past six months I have been using Salivix Pastilles and I have found them very good, you just suck one when needed.
- Like many people with SS I have stomach problems, gastritis, irritation of the stomach, in particular has made my life miserable at times. Although I cannot drink orange or apple juice, tea, coffee or alcohol because they all aggravate it, surprisingly grapefruit juice, pink or ordinary, is extremely soothing. I drink it every day, its like medicine!
- I use a pair of slightly tinted pair of ordinary glasses, the optician will do this for you. It takes away the glare of overhead lights and you look fashionable enough without wearing dark glasses indoors.
- For cracked lips try using petroleum Jelly (e.g Vaseline).
- Due to my dry mouth I keep licking my lips, because of this I found that my lipstick kept coming off. i recently started using "Lip infinity" from Max Factor, and have found it is brilliant.
- As I constantly use eye drops I cant use mascara, but now i attend a beauticians very six weeks and have my eyelashes dyded. It does cause discomfort for an hour or two but that is all.
Homemade mouth wash: A recipe for mouth wash
Mix together:
- One teaspoon of salt
- One teaspoon of baking powder
- One litre of cooled boiled water
The mouth wash needs to be kept in the fridge and made from fresh daily.
When you become a member of the BSSA you will receive a quarterly newsletter which contains alot more members tips and advice. Click for more membership information.
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